Hope Link was founded by three women who have children with rare diseases and special needs.  After years of trying to educate themselves and others about their children and the challenges they face, they recognized a great need; while all parents who have critically ill children and children with special needs face challenges, the obstacles and challenges presented with rare diseases are unique, and they need a unique support group.  Often, parents feel isolated due to the rarity of their child’s diagnosis. At Hope Link, the children are unique in diagnosis, but the experiences parents and families face are often the same. The personal experiences of these women allow Hope Link to provide encouragement to mothers raising children with rare and undiagnosed disorders.