Links and Online Resources

The links and resources below contain a great deal of useful information.  If you know you have a need, but are not sure where to start, please contact us so we may point you in the right direction.  One of our primary goals is to make sure you are equipped to make good decisions about your child's care.  One of the best ways to do that is to make sure you know what services are available for your child and your family.

If you have a good resource that may be useful to others, and it is not already listed here, please contact us and we will make it available.

Websites

 Blogs, Online Support Groups, & Discussion Boards

Diagnosis Specific Sites 

Mitochondrial Disease
United Mitochondral Disease Foundation

Cystic Fibrosis
MDJunction- CF Support Group

 

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